Professionalism and Drugs

I learned last week that it’s difficult to simultaneously be professional and take a bunch of drugs. Perhaps that’s been common knowledge for decades when it comes to illegal drugs, but I’m talking about the plethora of prescription meds I take every day.

When I’m physically at my workplace, it’s easier for me to maintain my regimen. Almost all of my coworkers know my story and expect to see me popping pills at any given time. Many even know to stay away from my cubicle when my back is directly to its opening, since that usually means I’m injecting insulin into my exposed gut. This makes it pretty easy to conduct my business throughout a day of conducting business.

However, travel and off-site meetings are a bit of a different story. I went down to my business school alma mater – wahoowah! – last week. It was a great trip and I was able to visit with some old (in more ways than one!) professors and interact with the students. The best part of the trip by far was meeting a very senior executive at my company (“Elizabeth”) and seeing her speak to the students. After the speech, a few colleagues and I were invited to lunch with Elizabeth and a handful of Darden professors and senior staff, including the Dean. It was a pretty impressive group in a pretty fancy private room during a pretty formal meeting – as in, one did not get up and go to the bathroom in the middle.

This could present a problem for a few different types of people. Those with incontinence (or bladder weakness, as I recently learned it’s called) might have trouble in this situation. People with Crohn’s Disease could find themselves in some deep…well, you know. And it's a challenging situation for an insulin-dependent diabetic that also takes oral medications SIX (yep, it has gone up) times a day.

Going into the lunch, I knew the plan was to discuss topics one and two, then eat, then discuss topic three. If the plan had been to eat first, I could have injected beforehand, but I didn’t want to risk dropping on the floor during the first two discussions (though that would have been one way to ensure that Elizabeth remembered me!). So in I went for the pasta salad and other glucose-elevators typically found in these catered situations and willed my pancreas to step up to the plate just this once. When it came time to take my next set of pills, I quietly reached into my bag, pulled out my pouch and was just emptying that timeslot’s meds into my hand (fortunately, it’s more socially acceptable to use Purell in public) when the conversation moved to the Dean, who was seated right next to me at the head of the table. So there I was, with a handful of pills in one hand, my pill organizer in the other and my pouch of goodies spilling into my lap, when the whole table of highly credentialed people turned to face the Dean – and me.

I’m sure no one noticed the pharmacy in my lap; that’s not the point. The point is that it’s difficult to do what I need to do sometimes. I guess it really boils down to something I never fully appreciated until recently: it’s hard to be different. And it’s a pain in the butt to take a handful of pills at six regularly scheduled times, to inject myself with each meal and to prick my finger four times a day.

But, as I frequently remind myself, it’s not as big of a pain as the alternative. So I’ll take it. And one day when I’m not the most junior person in every meeting, maybe I’ll get more comfortable in my drug-dependent body.

Veni, Vidi, Vici...Almost

I will hereby admit my delinquency in this public forum: I have not thanked the majority of the people that contributed to the Share NJ 5k that took place in June. I’m officially now two months late (my mama taught me better!!). Despite what my tardiness may imply, I am incredibly grateful to all of you who contributed to this great cause! In total, our team raised a whopping $2,550 and the event – in its inaugural year – raised over $450,000!

In alphabetical order: THANK YOU.

Rob Anderson, Karin Bergqvist, Barbara Brewer, Ioana Brooks, Ivy Brown, Sally Bublinec, Jan Carlin, Scott Creighton, Anca Deliu, Debbie DeStasio, Lawanna Dimmerling, Kacey Dreby, Jennifer Ferrazza, Ann and Tom Fuller, Scott Fuller, Ross Fuller, Sal Giovine, Amanda and Wes Givens, Marion Guill, Ramona and Alvan Hampton, Rita Harris, Julia Healy, Fred Koberna, Marguerite and Chris Longo, Dawn Miles, Jana Morelli, Christine Musso, Tim O’Toole, Carla O’Brien, Tara Pullen, Amy Scalia, Jen Shrear, Kirsten Smith, Brieana Tascione, Fred Tewell, Johnelle Whipple, Jennifer Zangara

Those in blue made it to the race in person too! THANK YOU!

(If I missed anyone, I’m terribly sorry – the web site that captured this data was little tricky.)

After you all helped blow my fundraising goal out of the water, I was excited for the physical challenge. Apparently, the challenge of running a mile eleven months post-transplant was not enough for this girl, so I went and became very anemic to up the ante. In all seriousness, the anemia made exercising much more difficult and has caused me to essentially halt all exercise since the 5k in June. But I was determined to give it my best shot anyway, and thanks to all of the support – especially from those who were able to join me for the run – I very nearly accomplished my goal of running that final mile. Marguerite (bless her heart) claims I did run the whole thing, but she’s being generous as usual.

As with most of my recovery since July of 2010, it wasn’t pretty but it was progress. And I fully intend to run at least two miles at this same event next year.



The finish line!

Visit PHOTO ALBUM on the left for more photos of the big day.



Home, Sweet...Hilton Head

Hilton Head Island, South Carolina has long held a special place in my heart. My family started vacationing there in the early nineties, and since 1996 my friends and I have created innumerable memories of our own. I’ve spent a lot of time in Hilton Head, from quick visits to one entire summer during college, and I have a veritable almanac of fond memories from those times spent with friends and family.

But Hilton Head has further entrenched itself in my heart and mind after my most recent visit last week – and for three separate reasons that I’ll share in chronological order. The first treat of the week was getting to spend time with my parents, two of my three brothers, my sister-in-law, and best of all (no offense to the rest of you) my perfect little nephew. This was my second time seeing Baby Michael, and it’s just amazing to see him grow (mostly in width!) and develop. He is starting to grin and respond and even spent some fun time in the pool, which I’m convinced he thought was a giant bathtub. I’m trying to decide if I can justify another trip down south to see him before Thanksgiving…we’ll see. This aunt is smitten.


Look closely, he's rocking his organ donation onesie!

The second thing that happened in Hilton Head was about as special as it gets. I celebrated a full year with my new heart on July 21, and my parents and I met several of my donor’s family members that very day. [In the strangest of coincidences, T’neil’s family and I had planned to be in Hilton Head at the same time.] It’s impossible to articulate how much it meant to me to be able to meet and see and hug my donor’s mother, Denisha. I can’t say enough wonderful things about her warm and loving spirit, and it was a delight to meet her husband, aunt and uncle as well. We all chatted for quite a while, and they each used a stethoscope to hear T’neil’s strong heart beating in my chest. I think that meant the most to them, and I’m so glad I was able to give them a way to truly feel T’neil’s presence again.

Denisha made the call to donate T’neil’s organs last year, since they hadn’t previously discussed the topic. It takes a remarkable person to think of anonymous others when experiencing the anguish of a child’s sudden illness and death. Most of us can’t even imagine; I know I can’t. Denisha is that remarkable person. Her kindness during that impossible time saved many lives, including my own, and improved the lives of countless others. Even through a year of grief and pain, I can tell that she continues to be so proud of all of her children and their accomplishments. She feels T’neil’s presence when candles are lit and when butterflies are seen nearby, and she seems able to maintain focus and joy for her surviving children – especially one that is expecting a baby girl in the fall and another that hopes to go to college on a basketball scholarship. Oh, and she’s pretty focused on her own big birthday coming up in a few weeks, too! Denisha has a truly contagious aura of positivity and warmth around her, and I hope we will be a part of each other’s lives forever. Eventually, I would love to meet T’neil’s many siblings – I’ll be here whenever they are ready.


Isn't Denisha pretty?! I promise she's older than I am...

To round out the week of excitement, nine of my best friends came down to Hilton Head to celebrate my one year anniversary and recent thirtieth birthday. My parents graciously loaned us their house for the week and we happily accepted! People traveled from North Carolina, Boston, Pennsylvania and even Utah for the celebration, and we had a great time. I strayed wildly from my diet for several days, but I figured I could splurge a bit for the occasion.


Most of us!

Now I’m back in New Jersey, preparing for the return to real life tomorrow. After nearly two weeks of vacation, my alarm clock is going to be quite a shock in the morning. But whenever I get tired or frustrated or down, I know I can close my eyes and peruse my internal database of unforgettable memories from Hilton Head Island, both old and new.

T Minus One Week!



Front

I am getting really excited about the big race on June 12! After much deliberation, we have finalized the official See Andrea Run team t-shirts! I’ve purchased shirts for everyone who signed up to join our 5k team but want to make them available to anyone else interested in joining us from afar. The link below will take you to zazzle.com where you can purchase these limited edition gems :)

http://www.zazzle.com/see_andrea_run_tshirt-235257985241462342

Additionally, I want to extend a HUGE thank you to all of those who have donated to this important cause. Thanks to you, we have raised $1,850 so far! I’m so touched by all of the support and feel great about us being able to make such a sizable impact!

If you still want to contribute and/or sign up to join us on June 12, there’s still time! Just click HERE for the team page. You can sign up until the day of the race and donations are accepted until June 17.


Back



See Andrea Run

June 12 seemed really far away when I first learned of the Donate Life 5k. I was sure my goal of running a mile straight was achievable. I secretly hoped I’d be able to run the full 5k but opted for a more modest goal. Theoretically, I thought, a young and otherwise athletic person should be able to run at least a mile ELEVEN months post-transplant.

But things don’t always go as expected – I can certainly attest to that. For a variety of reasons my exercise has progressed more slowly than I’d hoped and running a mile straight remains a lofty goal.

It’s a loft goal yes, but one that I’m fully committed to making a reality in a few short weeks. I know I can do it if I can drum up some serious support! Here’s where you come in.

Do you run? If so, please sign up to walk/run with me! (There is a $25 sign-up fee.) You’ll be supporting me and all future recipients of life-saving transplants in New Jersey. The more people I have jogging [slowly] beside me, the better the chance I have of running that full mile!

Are you loud? A bunch of cheerleaders near the end of the race would move mountains for me. Just picturing cheerleaders helps me push for an extra minute on the treadmill, so imagine the power of a real live cheering section!

Can’t make it in person? Please make a donation of any size to our team! The NJ Sharing Network (also known as Donate Life New Jersey) is the organization responsible for raising awareness of organ donation in this state, matching donors with recipients and facilitating contact between the donor family and transplant recipient. Needless to say, I’m extremely passionate about this wonderful group.

Like t-shirts? You’re in luck. Commemorative team (See Andrea Run) t-shirts are in progress…more to come!

Aside from returning to work, this is my biggest post-transplant milestone thus far. Please help me achieve my goals of raising $1500 for this critical cause and running that full final mile on Sunday, June 12.

The event takes place at 10am in New Providence, NJ. Click on the link below for our team site and look for the buttons that say “donate here” and/or “join this team”.

SEE ANDREA RUN

With your support, I can do this and we can all help raise awareness of organ donation. THANK YOU!!

Nacho Mama, MY Mama

Well, an eleventh hour Happy Mother’s Day to all of the moms out there! I’d say Mother’s Day (with Father’s Day as a close second) is the most important of Hallmark’s invented holidays. There are a lot of mothers that deserve thanks and celebration today, and I’d like to honor four here.

First, my sister-in-law Maggie is celebrating her own motherhood for the first time this year, so this Mother’s Day is extra special! A couple of weeks ago she became mom to the sweetest little monkey in the world, my very first nephew Michael. I can’t wait to meet the little man in a couple of weeks! Maybe the little guy will give you the gift of sleep for your first Mother’s Day!

The second mom I celebrate today is my donor’s mother, Denisha. As I’ve said before, I wholeheartedly admire the strength and courage of this wonderful woman. Even on this first year that she celebrates Mother’s Day with one fewer child in her household, she is able to reach out and think of others. Please join me in praying for this gracious woman today. I am beyond delighted to announce that it looks like I’ll be able to meet Denisha this summer (more to come)!

Third, I celebrate Kathy Ritvo, the woman that trained Mucho Macho Man, a strong contender in yesterday’s Kentucky Derby. She was diagnosed with cardiomyopathy in 2001 (I believe at age 32) and became very ill before receiving a heart transplant in 2008. Shortly after her transplant, Kathy was back to doing what she loved. She credits a desire to be there for her children with helping her hang on in those final weeks before a donor was identified. I’m sure every Mother’s Day is quite the occasion for that family.

And most of all, I celebrate my mom today. I celebrate her for staying home with her four children, all of whom provided some significant challenges along the way. I celebrate the woman who attended every soccer game, from Atlanta to Texas and California to Ohio, despite my inability to appreciate that attention and support at the time. I celebrate the woman who just became a grandmother and is going to be the best darn grandmother on this Earth. I celebrate the woman who is so generous and gives so much of her time to charity. And I celebrate the woman who single-handedly saved my life with that first trip to New Jersey in October 2009, who provided and continues to provide constant support and love through some difficult times and who put her life on complete hold to come live with me for many months so that I could maintain some semblance of my life in New Jersey.

I’m sure you all have wonderful reasons to celebrate your mothers this weekend. I’m sure they have all done wonderful things for you throughout your life. But I have to tell you that the best mom of all is NACHO MAMA, it’s MY MAMA. Happy Mother’s Day, Mom. I love you very much.

Mom and me on Christmas night, 2010.

Winning...Part Deux

First – to belatedly follow-up on “Winning” the first, I am happy to announce that Eva Cauble (oddly another Eva C. winner but I promise a different one!) won the AHA Cookbook challenge for healthy eating tips and recipes! At the bottom of this post is her delicious-looking recipe for homemade granola and the other tips I received. Thanks to those who participated!

No offense to Eva or you other contributors, but what I’m SUPER excited to announce is the fact that I just ran TEN MINUTES straight! This is three minutes more than my previous best and gets me within spitting distance of running a full mile straight, which is my goal for June 12. I have signed up and created a team for the June 12 5k for Donate Life, and I will provide full details very soon. In the meantime, rest assured that I am continuing to push myself. Some work-outs are great, others are brutal – I continue to try to identify trends among the good ones. I think I’ve landed on 1) an empty stomach, 2) plenty of sleep and 3) ensuring my HR is over 120 and climbing before starting to run. Stay tuned for details on the June 12 5k!

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Healthy Granola

3 cups old-fashioned rolled oats (not instant)
1 cup sliced almonds
1 cup sunflower seeds
1/2 T ground cinnamon
1/4 t salt
1/2 cup grade A dark amber syrup
2 T butter
1/2 cup craisins
1/2 cup dates
1/2 cup chocolate chips

Preheat oven to 325. Mix together the first 5 ingredients. In a small bowl, stir together the syrup and melted butter. Pour the syrup mixture over the dry ingredients, coating the dry ingredients well. Spread this mixture onto baking sheets (greased or lined with parchment paper) and bake for 30-45 minutes until golden brown, stirring occasionally. Add the craisins, dates, and chocolate chips or whatever dried fruit combination you prefer.

Cookbook Tip
Ellie Krieger (The Food You Crave and So Easy) – healthy, delicious and super easy to make

General Tips
1. Track food intake throughout the day – one free resource is a tracker at www.mypyramidtracker.gov
2. Use a rolling 10-day average of how well you’ve maintained healthy eating habits, this way you won’t have to suffer so much guilt if you cheat or stray one day!