Showing posts with label american heart association. Show all posts
Showing posts with label american heart association. Show all posts
Saturday, January 14, 2012
Almost Famous
I’m pretty much famous at this point after completing my second career radio interview and turning down a television appearance.
My first radio interview was live. When I learned that it would be aired live, I wondered if the people at the radio station would have made a different call if they’d known how awkward and inappropriate I can be. Fortunately, I was able to keep my internal dialogue to myself and successfully stuck to the subject at hand. The interview took place in October and was intended to raise awareness for the American Heart Association Heart Walk. Overall, I felt pretty good about it…probably because I never actually heard it afterwards.
My second radio interview was pre-recorded to allow for editing before being aired. Because of this, I was relaxed about it and was therefore completely unprepared. I’m pretty sure it was a hot mess and am crossing my fingers for some pretty serious editing. The good news for me (bad news for the cause) is that it will air at 6am tomorrow (Sunday), during which time no person of sound mind will be listening. The bad news is that it will be available online by Monday. If I find the recording to be less embarrassing than I currently anticipate, I'll post a link here for all to enjoy. The point of this interview was to raise awareness of Go Red For Women’s National Wear Red Day, which takes place on Friday, February 3 [click here to see photos from last year]. Please wear as much red as possible that day and tell everyone you know why you are dressed up like a giant dot-free ladybug. The goal of Go Red For Women is frankly to stop the killing – heart disease is the #1 killer of women in this country, and it doesn’t have to be.
The television appearance could have been my big break, but unfortunately I’ll be out of town on business the day of the taping. Was I going to be on Ellen? No. The Today Show? Not so much. After all, I’m no Bionic Bride! It was to be an interview with a local tv station that I think has a reach of roughly 17 people in the central New Jersey area. Like I said, could’ve been big.
Remarkably, amid this media firestorm and inescapable jungle of paparazzi, I was also interviewed for an article to be included in the Robert Wood Johnson University Hospital magazine. I always like to recognize the fine folks at RWJUH (except for that one guy that tried to kill me) for the multitude of times they saved my life. If my captivity-driven moodiness (and stench) and unladylike management of the gowns wasn’t enough to fully express my gratitude, I’m sure seeing their names in print (in smaller font than mine) will make up the difference. During this interview, I was also asked if I was willing to be photographed for both the article and potentially future marketing materials…including billboards. That’s right. Soon the fine people of New Jersey may be unable to escape my prematurely wrinkled and unnaturally pale face.
They’ll probably just mistake me for Kate Hudson.
Sunday, October 9, 2011
A Brief Update
I had the honor of serving as Survivor Ambassador for the American Heart Association Heart Walk last weekend. I got to do a live radio interview the day before and said a few words at the event itself. I enjoyed both opportunities but the walk itself was the highlight. We had a team of about 15 people plus several babies and my new canine roommate, Piper! Despite the monsoon season we’d been having here in New Jersey, the weather cooperated for the walk. Overall, I’d say it was a success – and much easier physically than last year!
Some other things I’ve been thinking about lately…
- I was joking with friends lately about how convenient it would be to find a phlebotomist boyfriend. I guess I could set my sights a little higher and look for a cardiologist boyfriend, but I don’t want to push my luck.
- I’m thinking about being Frankenstein for Halloween. That should require zero effort.
- I have officially decided to write a book! So far I have four and a half pages. I’m thinking I might complete it by 2032.
Some other things I’ve been thinking about lately…
- I was joking with friends lately about how convenient it would be to find a phlebotomist boyfriend. I guess I could set my sights a little higher and look for a cardiologist boyfriend, but I don’t want to push my luck.
- I’m thinking about being Frankenstein for Halloween. That should require zero effort.
- I have officially decided to write a book! So far I have four and a half pages. I’m thinking I might complete it by 2032.
Saturday, September 24, 2011
It's T-Shirt Time!
Come one, come all to the 2011 Central NJ Heart Walk! It’s hard to believe that October 1 is just ONE week away! It’s definitely time to order the latest limited edition t-shirts!
I am honored to be this year’s survivor ambassador – what an improvement from last year, when I wasn’t sure I could even complete the 5k walk! Experiencing the energy at last year’s walk and having many friends (and my mom) walk with me was really special, and I hope to contribute to that kind of energy again this year. My goal is to give hope to at least one person early in his or her heart disease battle the way people did for me last year.
If you can join the fun but haven’t signed up yet, click here. The more the merrier! Our team name is We Got The Beat.
The We Got The Beat design team has created a versatile selection of shirts for your wearing pleasure – for men, women, toddlers and even pregnant ladies! Go to this link [fast!] to order yours: http://www.cafepress.com/heartwalk2011.
If you can’t attend but want to contribute to this great cause, please click here to make a donation. The American Heart Association works tirelessly to fund important research initiatives and to educate people about the risks and symptoms of heart disease.
Two of my very good friends already participated in the San Francisco Heart Walk – thanks so much to Rachael and Ioana! You guys are the best!
Sunday, September 4, 2011
Seven Months Ago Today...
Seven months ago today was National Wear Red Day for the American Heart Association's Go Red for Women movement. In keeping with my recent timeliness, I want to FINALLY share some awesome pictures from that day! In my defense, my good friend (to remain nameless…) took the great office pictures on February 4 and promptly suffered HTWTCA (How-To-Work-The-Camera-Amnesia), so I only received them a few weeks ago when her fabulous husband took matters into his own hands!
I was traveling by air on the big day back in February, which provided a captive audience for my awareness efforts. I had the lady in the window seat pinned in for a good two hours. I didn’t lay my whole story on her, but I did take the opportunity to [briefly] tell her about Go Red for Women and why it’s important to me.
Thanks to all!
Also, mark your calendars: The American Heart Association Central NJ Heart Walk is on October 1. Click here to sign up to walk with our team (WE GOT THE BEAT) or click here to make a donation to this important cause. All support is appreciated!!
I was traveling by air on the big day back in February, which provided a captive audience for my awareness efforts. I had the lady in the window seat pinned in for a good two hours. I didn’t lay my whole story on her, but I did take the opportunity to [briefly] tell her about Go Red for Women and why it’s important to me.
![]() |
| My Go Red Outfit |
Meanwhile, back at the office… I’ll let the pictures speak for themselves. I think it's clear that these are some good friends!! (More pictures in photo album page.)
My good buddy Sean ended up staying home sick from work that day. However, thanks to his dedicated friendship (and probably the larger factor – his crazy competitive nature), he rocked his red outfit for the camera before conking out for the day.
Rico went Red remotely too! (Can't get the photo to work...)
And my wonderful cousin Emily dressed her precious little girls up in red for the occasion. Aren’t they sweet?!!
Also, mark your calendars: The American Heart Association Central NJ Heart Walk is on October 1. Click here to sign up to walk with our team (WE GOT THE BEAT) or click here to make a donation to this important cause. All support is appreciated!!
Friday, April 22, 2011
Winning...Part Deux
First – to belatedly follow-up on “Winning” the first, I am happy to announce that Eva Cauble (oddly another Eva C. winner but I promise a different one!) won the AHA Cookbook challenge for healthy eating tips and recipes! At the bottom of this post is her delicious-looking recipe for homemade granola and the other tips I received. Thanks to those who participated!
No offense to Eva or you other contributors, but what I’m SUPER excited to announce is the fact that I just ran TEN MINUTES straight! This is three minutes more than my previous best and gets me within spitting distance of running a full mile straight, which is my goal for June 12. I have signed up and created a team for the June 12 5k for Donate Life, and I will provide full details very soon. In the meantime, rest assured that I am continuing to push myself. Some work-outs are great, others are brutal – I continue to try to identify trends among the good ones. I think I’ve landed on 1) an empty stomach, 2) plenty of sleep and 3) ensuring my HR is over 120 and climbing before starting to run. Stay tuned for details on the June 12 5k!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Healthy Granola
3 cups old-fashioned rolled oats (not instant)
1 cup sliced almonds
1 cup sunflower seeds
1/2 T ground cinnamon
1/4 t salt
1/2 cup grade A dark amber syrup
2 T butter
1/2 cup craisins
1/2 cup dates
1/2 cup chocolate chips
Preheat oven to 325. Mix together the first 5 ingredients. In a small bowl, stir together the syrup and melted butter. Pour the syrup mixture over the dry ingredients, coating the dry ingredients well. Spread this mixture onto baking sheets (greased or lined with parchment paper) and bake for 30-45 minutes until golden brown, stirring occasionally. Add the craisins, dates, and chocolate chips or whatever dried fruit combination you prefer.
Cookbook Tip
Ellie Krieger (The Food You Crave and So Easy) – healthy, delicious and super easy to make
General Tips
1. Track food intake throughout the day – one free resource is a tracker at www.mypyramidtracker.gov
2. Use a rolling 10-day average of how well you’ve maintained healthy eating habits, this way you won’t have to suffer so much guilt if you cheat or stray one day!
No offense to Eva or you other contributors, but what I’m SUPER excited to announce is the fact that I just ran TEN MINUTES straight! This is three minutes more than my previous best and gets me within spitting distance of running a full mile straight, which is my goal for June 12. I have signed up and created a team for the June 12 5k for Donate Life, and I will provide full details very soon. In the meantime, rest assured that I am continuing to push myself. Some work-outs are great, others are brutal – I continue to try to identify trends among the good ones. I think I’ve landed on 1) an empty stomach, 2) plenty of sleep and 3) ensuring my HR is over 120 and climbing before starting to run. Stay tuned for details on the June 12 5k!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Healthy Granola
3 cups old-fashioned rolled oats (not instant)
1 cup sliced almonds
1 cup sunflower seeds
1/2 T ground cinnamon
1/4 t salt
1/2 cup grade A dark amber syrup
2 T butter
1/2 cup craisins
1/2 cup dates
1/2 cup chocolate chips
Preheat oven to 325. Mix together the first 5 ingredients. In a small bowl, stir together the syrup and melted butter. Pour the syrup mixture over the dry ingredients, coating the dry ingredients well. Spread this mixture onto baking sheets (greased or lined with parchment paper) and bake for 30-45 minutes until golden brown, stirring occasionally. Add the craisins, dates, and chocolate chips or whatever dried fruit combination you prefer.
Cookbook Tip
Ellie Krieger (The Food You Crave and So Easy) – healthy, delicious and super easy to make
General Tips
1. Track food intake throughout the day – one free resource is a tracker at www.mypyramidtracker.gov
2. Use a rolling 10-day average of how well you’ve maintained healthy eating habits, this way you won’t have to suffer so much guilt if you cheat or stray one day!
Thursday, April 14, 2011
Bueller...Bueller...Bueller...
Hello...is this thing on? I've received a handful of healthy eating tips and recipes, but I was hoping for at least double digits! I KNOW you have a good recipe that is already healthy OR is a traditional recipe made healthier OR is a dessert that doesn't have a ton of sugar OR a tip to get more vitamins and minerals in your diet OR a tip for sticking to a healthy diet OR a low-calorie snack OR something! Please share!
Why? First, to help me! After all, I am trying to stick to a heart-healthy, diabetes-friendly diet (although today was not a particularly successful day). I spent today in focus groups, which tend to cause m&m overloads. Second, to help other readers improve or stick to their diets. And finally, for a chance to win a great cookbook from the American Heart Association.
Pretty please?
See previous post for details. The deadline is Sunday, April 17!
Sunday, April 10, 2011
Winning... It's Not Just For Sheen Anymore
I can no longer keep myself from posting a gratuitous Charlie Sheen reference. I haven’t yet decided whether I feel sorry for his public demise, or if I just want him to SHUT UP. It’s quite clear that he is most definitely not winning. Two of you, on the other hand, are indeed winning – great gifts from the American Heart Association! Congratulations to Eva Challen and Katherine (Kaffrin) Edmonds for winning the first BetterU contest! AHA will be mailing you a great assortment of goodies, from a water bottle and jump rope to a yummy cookbook.
As for the rest of you, this is your next chance to win – this time the prize is a nice hard-cover American Heart Association cookbook! You can use it for yourself and your family, or it would make a great gift for someone that could use a little nudge toward a healthier lifestyle!
I’m currently using a cookbook called “Diabetes and Heart Healthy Meals for Two”, which was produced by AHA in collaboration with the American Diabetes Association. I would recommend this cookbook to anyone (diabetic or not) looking for inspiration to eat healthy meals that are also delicious. I’m confident that the one being given away here is just as wonderful as the one I have. Whoever wins will have to give me the full report!
My Aunt Tine recently told me that cinnamon has been shown to have a variety of health benefits, including lowering LDL cholesterol and blood pressure – two common factors in heart disease. I tried drinking it in my coffee, but most of it ended up sticking to the mug, so I now sprinkle it into the grounds before brewing the coffee – talk about winning. I don’t know how much benefit I get without actually ingesting the cinnamon itself, but I think it’s a great example of the little things we can do to try to make more healthful choices.
I’d like to know what little changes you are making to live a healthier lifestyle, whether you joined the BetterU program or not. Do you have a favorite recipe you made more healthy? Have you started taking extra vitamins or supplements, like I'm trying to do with my cinnamon coffee? I can use all the help I can get, so I would appreciate any and all advice – and hopefully your ideas will benefit other readers too!
So, here’s the skinny:
FIRST – send a recipe or any healthy eating tip to me by e-mail or by posting in the comments section
THEN – you have one week, I'll announce the winner on Sunday, April 17
FINALLY – I will share everything I receive so that everyone can benefit from everyone else’s recipes and tips… after all, it’s not ALL about me :)
If, like Charlie, you are tired of pretending you're "not a total bitchin' rock star from Mars" and are ready to start "winning", then send me your recipe or tip today!
As for the rest of you, this is your next chance to win – this time the prize is a nice hard-cover American Heart Association cookbook! You can use it for yourself and your family, or it would make a great gift for someone that could use a little nudge toward a healthier lifestyle!
I’m currently using a cookbook called “Diabetes and Heart Healthy Meals for Two”, which was produced by AHA in collaboration with the American Diabetes Association. I would recommend this cookbook to anyone (diabetic or not) looking for inspiration to eat healthy meals that are also delicious. I’m confident that the one being given away here is just as wonderful as the one I have. Whoever wins will have to give me the full report!
My Aunt Tine recently told me that cinnamon has been shown to have a variety of health benefits, including lowering LDL cholesterol and blood pressure – two common factors in heart disease. I tried drinking it in my coffee, but most of it ended up sticking to the mug, so I now sprinkle it into the grounds before brewing the coffee – talk about winning. I don’t know how much benefit I get without actually ingesting the cinnamon itself, but I think it’s a great example of the little things we can do to try to make more healthful choices.
I’d like to know what little changes you are making to live a healthier lifestyle, whether you joined the BetterU program or not. Do you have a favorite recipe you made more healthy? Have you started taking extra vitamins or supplements, like I'm trying to do with my cinnamon coffee? I can use all the help I can get, so I would appreciate any and all advice – and hopefully your ideas will benefit other readers too!
So, here’s the skinny:
FIRST – send a recipe or any healthy eating tip to me by e-mail or by posting in the comments section
THEN – you have one week, I'll announce the winner on Sunday, April 17
FINALLY – I will share everything I receive so that everyone can benefit from everyone else’s recipes and tips… after all, it’s not ALL about me :)
If, like Charlie, you are tired of pretending you're "not a total bitchin' rock star from Mars" and are ready to start "winning", then send me your recipe or tip today!
Labels:
american heart association,
betteru,
cinnamon,
coffee,
cookbook,
diet,
healthy eating,
heart,
heart disease,
heart transplant,
recipe,
win,
winning
Sunday, March 27, 2011
BetterU Week Two: Ignorance Is Not Bliss
I’ve made it through my first week of the BetterU program. Today is the first day of week two for me, so I’ll fill you in on how week one went and what’s going on this week. For those of you who have joined, I hope you’ll post about your progress in the comments!
My week one goal was to be active for 10 to 30 minutes each day. I did it for 6 out of 7 days last week, and I think that’s a pretty good start to a BetterMe. I exercised right here in my apartment 3 of the days – pounded on my quasi-heavy bag (yes, I know this is not a normal thing to own!) and just generally bounced around for 10 or 20 minutes. I went to the gym the other three days and even did my full 9-minute run once (45 minutes on the treadmill with three 3-minute intervals of jogging). All in all, I had an active week, thanks to the motivation I got from BetterU.
Week two is all about reducing risk factors for heart disease, which begins with knowing what they are and which ones you have. I happen to be very well acquainted with my own risk factors, and I encourage you to identify and reduce yours. The main controllable risk factors are as follows:
If you don’t know what your blood pressure is, find a drug store that has one of those chairs with the cuff. Normal is 120/80, anything within ten or twenty points either way is probably okay. If you don’t know your cholesterol, talk to your doctor about having some simple blood work done to find out. If you don’t have a general doctor, find one! In the case of heart disease factors, ignorance is most definitely not bliss.
The point this week is that there are little choices we can make every day to reduce our risk for heart disease. With that in mind, I set the following goal for week two:
While on 3 days of business travel this week, I will choose to avoid sweets and desserts.
Now, you may be thinking: Isn’t this girl diabetic? I sure am, but I cheat and squeeze sweets into my diet sometimes. On top of this tendency, travel is synonymous with unhealthy eating in my mind. For some reason, I’ve always allowed myself to indulge while traveling. On trips like this, there are always sweets and snacks lying around, begging to be eaten. There are fancy dinners, which seemingly everyone finishes off with decadent desserts. Not this girl, not this week. Wish me luck!
Why you should sign up for the program with Go Red For Women:
The Ugly Truth: Heart disease is the #1 killer of women age 20 and over, killing approximately 1 woman every minute.
The Good News: About 80% of heart disease is preventable.
What We Can Do: 90% of women have one or more risk factors for developing heart disease – together we can reduce this number drastically!
How BetterU Can Help: Research shows that women who Go Red are more likely to make healthy changes in their lives.
• More than 1/3 have lost weight.
• Nearly 50% have increased their exercise.
• Six out of ten have changed their diets.
My week one goal was to be active for 10 to 30 minutes each day. I did it for 6 out of 7 days last week, and I think that’s a pretty good start to a BetterMe. I exercised right here in my apartment 3 of the days – pounded on my quasi-heavy bag (yes, I know this is not a normal thing to own!) and just generally bounced around for 10 or 20 minutes. I went to the gym the other three days and even did my full 9-minute run once (45 minutes on the treadmill with three 3-minute intervals of jogging). All in all, I had an active week, thanks to the motivation I got from BetterU.
Week two is all about reducing risk factors for heart disease, which begins with knowing what they are and which ones you have. I happen to be very well acquainted with my own risk factors, and I encourage you to identify and reduce yours. The main controllable risk factors are as follows:
High Blood Pressure – Smoking – High Cholesterol – Physical Inactivity – Obesity or Being Overweight – Diabetes
If you don’t know what your blood pressure is, find a drug store that has one of those chairs with the cuff. Normal is 120/80, anything within ten or twenty points either way is probably okay. If you don’t know your cholesterol, talk to your doctor about having some simple blood work done to find out. If you don’t have a general doctor, find one! In the case of heart disease factors, ignorance is most definitely not bliss.
The point this week is that there are little choices we can make every day to reduce our risk for heart disease. With that in mind, I set the following goal for week two:
While on 3 days of business travel this week, I will choose to avoid sweets and desserts.
Now, you may be thinking: Isn’t this girl diabetic? I sure am, but I cheat and squeeze sweets into my diet sometimes. On top of this tendency, travel is synonymous with unhealthy eating in my mind. For some reason, I’ve always allowed myself to indulge while traveling. On trips like this, there are always sweets and snacks lying around, begging to be eaten. There are fancy dinners, which seemingly everyone finishes off with decadent desserts. Not this girl, not this week. Wish me luck!
Stay tuned for the winners of the week one contest – I will announce two winners as soon as I figure out what the prizes are :)
The Ugly Truth: Heart disease is the #1 killer of women age 20 and over, killing approximately 1 woman every minute.
The Good News: About 80% of heart disease is preventable.
What We Can Do: 90% of women have one or more risk factors for developing heart disease – together we can reduce this number drastically!
How BetterU Can Help: Research shows that women who Go Red are more likely to make healthy changes in their lives.
• More than 1/3 have lost weight.
• Nearly 50% have increased their exercise.
• Six out of ten have changed their diets.
Sunday, March 20, 2011
Could You Be A BetterU?
The last several days have been less than ideal for me. I went into the hospital the mornings of Thursday and Friday for iron infusions. I was nervous about side effects but really excited about the prospect of soon having more energy. It was expected that iron followed by another medicine would boost my hemoglobin and increase my energy – a very welcome change.
Thursday morning was fine. I was really nervous, but the whole visit was completely uneventful. The nurse found my vein with no problem and had the iron solution flowing within an hour of my arrival. I left feeling fine and went into work for the afternoon.
Over my nerves, I waltzed in on Friday morning thinking more about my impending business trip than any potential problems with the infusion. About 75% of the way through, I became nauseated and developed red splotches on my face. The nausea increased quickly, as did my heart rate, and the splotches made their way down my neck. The nurse stopped the iron immediately, hung a bag of Benadryl and called my cardiologist. I’ll skip the rest of the details, but after the Benadryl, a bag of nausea medicine, lots of IV fluids and an hour or two of drifting in and out of sleep, I felt a lot better. Today, I’m relieved to be feeling normal again – at least as normal as I felt before Friday.
Since we’d identified the driver of my fatigue, I allowed myself to skip out on exercise over the past week or so. It was just a convenient excuse for a break, since my anemia had been present for months. I realized this weekend there is no excuse for not being physically active. Doing some sit-ups and my wannabe push-ups is better than lying on the couch. Going for a long walk is better than standing still. It bothers me to exercise without giving 100%, but I’m trying to embrace the notion of more frequent work-outs at 50%.
With this new outlook, I joined the American Heart Association’s BetterU program today. It’s the first day of spring and I’m springing into a Better Me (hemoglobin be darned)! I signed up at www.goredforwomen.org/betteru and I really hope you’ll join me. BetterU is a free 12-week program designed to help ANYONE ANYWHERE decrease his or her risk of heart disease. If I can do it post-transplant and with sub-par hemoglobin levels, I’m sure you can do it too!
Sign up by March 26th (and be sure to let me know by email – aef616@hotmail.com) and you could win a great prize from the American Heart Association! And to help maintain your commitment throughout the 12 weeks, we’ll have more contests along the way!
The program encourages goal-setting and small changes that can be sustained in the long-term. My goal for the first week is to find one block of inactivity (between 10 and 30 minutes) each day and turn it into physically active time. Even ten minutes of extra activity each week adds up to over an hour of exercise I wouldn’t have otherwise gotten!
Even if you already exercise regularly and follow a perfectly healthy diet, this program will help you become more aware of the risks and warning signs for heart disease. So even if your risk is already low, I feel sure you can learn a thing or two through the BetterU program. Please join me today!
**Note that while the program is targeted toward women, men should sign up too!**
Wednesday, February 2, 2011
This Friday Is National Wear Red Day!
This Friday (2/4/11) is not only the day that I fly south in search of warmer weather (and people who want to buy what I sell) – it’s also National Wear Red Day! This special day takes place on the first Friday of February each year to raise awareness of heart disease being the #1 killer of women and to raise funds to further the fight against heart disease.
I’ll be rocking my red and screaming my story (as usual!) and ask that you join me. Would you commit to telling at least two people some simple facts on Friday? Spreading information is the first step in fighting heart disease! For the record, I already have one friend that essentially converted her office into a heart disease awareness center (you da man, Dawn!) and another (to remain anonymous) who has promised to wear red undies – can you top these guys?! I would LOVE to see some fun/crazy “I wore red and_________________” stories in the comments! (For those technically-impaired, e-mail me and I will post the goods myself!)
FAST FACTS
• Heart disease is the #1 killer of women.
• More women die from cardiovascular disease than from the next four causes of death combined – including all forms of cancer.
• A woman dies from cardiovascular disease every minute.
• Only 1 in 5 women believes heart disease is her greatest health threat.
KNOW THE SYMPTOMS
Since my end-stage heart failure was originally misdiagnosed, spreading awareness of symptoms is particularly important to me so that people can advocate for themselves in the future. My story could have been very different if I had recognized my symptoms.
Heart Failure
• Shortness of breath, especially while lying flat
• Swelling due to fluid retention (often in the legs and other limbs, mine first showed up in my abdomen)
• Increased heart rate
• Tiredness, fatigue; persistent coughing or wheezing; lack of appetite, nausea
Heart Attack
• Chest discomfort (pressure, squeezing, fullness or pain)
• Upper body discomfort (one or both arms, back, neck, jaw, stomach)
• Shortness of breath
• Cold sweat, nausea; lightheadedness
I am so grateful for all of the support thus far in joining the fight against heart disease and driving awareness of organ donation. I hope you will join me in wearing red on Friday! For more information, go to www.goredforwomen.org.
GO RED!
Thursday, November 4, 2010
Heart Walk 2010
I’ll keep this short and sweet – the pictures tell a better story than I could anyway! Thanks to MANY friends and family members, I was able to raise $3320 for the American Heart Association (and that’s before any company matching programs)! Our team of 10.5 (ten adults and a baby) crossed that finish line with no problem! My sneaky mom even came into town and surprised me at the walk! It was pretty great to get that 5k walk under my belt – now I look forward to a 5k run. Probably WAY forward, but I’ll get there. So far I’ve jogged four minutes in a single work out, two minutes consecutively.
Thank you again to all of the generous donors and a HUGE thank you to Team Andrea:
Mom – VP, Surprise
Marguerite – Fashion Director & Surprise Coordinator
Chris – Manager, Halloween Hair
Breezy – Director of Photography
Nick – Senior Assistant to the Photographer & Chauffeur (for better or worse)
Karin – Manager, Team Spirit
Marion – Manager, Entertainment
Kara – Manager of Two Below Team Members
Sean – Manager of Four Letter Words
Ryan – Cutest Team Mascot Ever
Thank you again to all of the generous donors and a HUGE thank you to Team Andrea:
Mom – VP, Surprise
Marguerite – Fashion Director & Surprise Coordinator
Chris – Manager, Halloween Hair
Breezy – Director of Photography
Nick – Senior Assistant to the Photographer & Chauffeur (for better or worse)
Karin – Manager, Team Spirit
Marion – Manager, Entertainment
Kara – Manager of Two Below Team Members
Sean – Manager of Four Letter Words
Ryan – Cutest Team Mascot Ever
Labels:
5k,
american heart association,
donors,
heart,
heart disease,
heart failure,
heart transplant,
mascot,
run,
team andrea,
thank you,
walk
Sunday, October 3, 2010
Signs of Fall
I can’t believe it’s already October! It seems like we went from the dead of summer to chilly fall in a 24-hour period, which I appreciate. Fall is my favorite season, and last year I spent a good portion of it in the hospital. This year, I intend to enjoy this awesome cool weather by spending lots of time outside.
Unfortunately, the American Heart Association 5k walk that was scheduled for yesterday was postponed until later this month because of flooding. It was a big disappointment, but at least now I have more time to get stronger and continue to nurse my foot. Plus, I got some new cushiony kicks to hopefully prevent future foot injuries that I need to break in. They make me feel like I’m walking on spring boards.
My friend Marguerite is sort of rabid about making t-shirts for various events, so she created awesome “Team Andrea” t-shirts for the occasion. We decided to spend some time outside and sport our t-shirts yesterday, despite the postponement.
In other news, I’m now about ten and a half weeks out from surgery and have shown zero rejection in my last several biopsies. I have one more bi-weekly biopsy in a week and a half, then I will only have them once a month – a huge relief. My biopsies are particularly difficult because I apparently have very small veins. I told my cardiologist that’s the daintiest part of my body.
My latest excitement is the development of diabetes. I wasn’t responding to the meds the way the doctors expected, so they tested to see if my pancreas is working. It turns out, my pancreas seems to be working part-time, leaving me with an unusual sort of hybrid of type 1 and type 2 diabetes. Having one of the more straightforward versions is just too boring for me, I guess. I like to keep things exciting. Apparently my pancreas was damaged either when I had multi-organ failure last year or maybe during transplant. So we are experimenting with meds to see what works best. Ideally, I won’t require insulin over the long-term, but right now I inject myself once a day. It’s no fun, but I’m getting used to it. It’s not nearly as scary as I had expected.
My biggest news is that I’m planning to return to work on November 1! I’m very excited about resuming my normal life and using my brain again!
Even as I’m so excited about regaining some normalcy, I remember that so many others are in different stages of this disease. One of my heart failure buddies is on hold (not working, not feeling good), waiting to see if her own heart recovers and she can avoid transplantation altogether. Another just got an LVAD (left ventricular assist device) put in a couple of days ago to bridge her to transplant. Yet another young woman I know in Canada has been awaiting a heart for over a year. I hope that by sharing my small victories and bits of progress, I can reassure these friends that things will get better. I’m a different person than I was a year ago – you will feel good again one day, too.
Now, I’m off for a stroll in the crisp fall air…
Unfortunately, the American Heart Association 5k walk that was scheduled for yesterday was postponed until later this month because of flooding. It was a big disappointment, but at least now I have more time to get stronger and continue to nurse my foot. Plus, I got some new cushiony kicks to hopefully prevent future foot injuries that I need to break in. They make me feel like I’m walking on spring boards.
My friend Marguerite is sort of rabid about making t-shirts for various events, so she created awesome “Team Andrea” t-shirts for the occasion. We decided to spend some time outside and sport our t-shirts yesterday, despite the postponement.
In other news, I’m now about ten and a half weeks out from surgery and have shown zero rejection in my last several biopsies. I have one more bi-weekly biopsy in a week and a half, then I will only have them once a month – a huge relief. My biopsies are particularly difficult because I apparently have very small veins. I told my cardiologist that’s the daintiest part of my body.
My latest excitement is the development of diabetes. I wasn’t responding to the meds the way the doctors expected, so they tested to see if my pancreas is working. It turns out, my pancreas seems to be working part-time, leaving me with an unusual sort of hybrid of type 1 and type 2 diabetes. Having one of the more straightforward versions is just too boring for me, I guess. I like to keep things exciting. Apparently my pancreas was damaged either when I had multi-organ failure last year or maybe during transplant. So we are experimenting with meds to see what works best. Ideally, I won’t require insulin over the long-term, but right now I inject myself once a day. It’s no fun, but I’m getting used to it. It’s not nearly as scary as I had expected.
My biggest news is that I’m planning to return to work on November 1! I’m very excited about resuming my normal life and using my brain again!
Even as I’m so excited about regaining some normalcy, I remember that so many others are in different stages of this disease. One of my heart failure buddies is on hold (not working, not feeling good), waiting to see if her own heart recovers and she can avoid transplantation altogether. Another just got an LVAD (left ventricular assist device) put in a couple of days ago to bridge her to transplant. Yet another young woman I know in Canada has been awaiting a heart for over a year. I hope that by sharing my small victories and bits of progress, I can reassure these friends that things will get better. I’m a different person than I was a year ago – you will feel good again one day, too.
Now, I’m off for a stroll in the crisp fall air…
Friday, September 17, 2010
How Do You Feel?
I feel thankful for the strength of the heartbeat that keeps me up at night.
Every strange sensation in my body causes me to feel fright.
I feel joyful knowing I recently laughed hard enough to leave my chest sore for days.
I feel grateful for the sympathy and support you’ve shown in so many ways.
I feel compelled to drive organ donation and the fight against heart disease.
I feel fearful and frustrated about my newly developed diabetes.
My legs already feel stronger than they’ve felt in well over a year;
I feel motivated and ready now to get my upper body in gear.
I feel most comfortable with a good book in a nice warm bath
And least so on the freezing cold table in the cath lab.
I feel less and less plagued by my medications’ many side effects,
Though I’m always a bit on edge, wondering what might hit me next.
I feel inspired by transplant recipients who go on to do great things
Like run marathons, climb tall mountains and start families.
I feel energetic most of the time, something that used to be so rare,
But I occasionally feel exhausted by the overwhelming nature of my care.
I feel frustrated by the pain in my foot that prevents a long walk or hike,
But I’m glad I can get some good exercise on the stationary bike.
I feel relieved each time I remember I’m no longer tethered to medical equipment.
I feel fulfilled when I can answer a question for a fellow heart patient.
Hand tremors make me feel decrepit but shouldn’t last too many more weeks.
My newfound fear of germs makes me feel like a bit of a freak.
I feel optimistic about the future and grateful for the opportunity to plan for distant dates.
I feel eager to hit the six month mark, when I should return to a pretty normal state.
I feel haunted by what could have happened to me, the “what ifs” play on repeat in my mind.
But mostly, I feel fortunate for the good providence that’s kept me alive since October 2009.
Wednesday, September 1, 2010
Start! Heart Walk
I set a goal of running a 5k sometime in the next year or so, but I’m planning to walk one on October 2 (less than 11 weeks post-transplant!). I have been having trouble with my left foot since I picked up my walking regimen and saw an orthopedist on Monday (because hey, why not see one more doctor?). He said I have a bone bruise and advised that I avoid high-impact exercise like walking, but I’m hoping to be better in a few more weeks. If not, there is a turn-off where walkers can opt to do a mile instead of the full 5k. For now, I’m planning to walk the full 5k. I think I can, I think I can…
Anyway, the event is the Start! Heart Walk benefiting the American Heart Association (AHA). The mission of the AHA is “building healthier lives, free of cardiovascular diseases and stroke.” An important part of this mission is spreading awareness of the prevalence of heart disease, promoting familiarity with symptoms and educating health care providers about best practices.
In October 2009, I was misdiagnosed by doctors at an urgent care center and later at the ER, which could have easily led to my death. It’s critical that we know the symptoms of various types of heart disease so we can advocate for our own health. Did you know that heart disease is the #1 killer of Americans (and the #1 killer of women over 25)?
I set a personal goal to raise $500 for heart disease and stroke research and education, which I have already surpassed thanks to your generous contributions! My new goal is to reach $1000 by the end of September. Thank you to those who have already contributed – to the rest of you, please help me reach my new goal and further the fight against heart disease! Also, if you are interested in walking with me (in Bridgewater, NJ), please let me know – the more the merrier!
You can help by making a donation online or by sending a check to me. A donation of any size is greatly appreciated and will help me achieve my goal. Click HERE to visit my personal donation page where you can make a secure online credit card donation. The American Heart Association's online fundraising website has a minimum donation amount of $25, but please feel free to make a smaller donation by sending a check directly to me. Your donation will make a difference in the fight against our nation's #1 and #3 killers - heart disease and stroke. Thank you for your support.
It’s been a while since I’ve shared a status update. Things are good here. Besides the occasional bad day and some lingering side effects like insomnia and a sore chest, I am trending toward normal. Apparently, six months is the magic timeframe after which I will consistently feel normal, so I’m looking forward to that. Today marks my six-week anniversary, and I celebrated with an excitement-free biopsy experience this morning, which is just how we like them. This was my last weekly biopsy, which is a huge relief for my poor neck! I will now have them every other week for six weeks, then they will spread out even more. Wahoo. I’ll find out my rejection score tomorrow or Friday – I have fortunately had no rejection the last two weeks.
About the American Heart Association:“The American Heart Association is the largest voluntary health organization working to prevent, treat and defeat heart disease, stroke and other cardiovascular diseases. These diseases, the Nation's No.1 and No.3 killers, claim more than 865,000 American lives a year. Thanks to all our walkers, donors and volunteers who have accepted the challenge to help fight heart disease and stroke. We cannot achieve our mission without each one of you!”
Anyway, the event is the Start! Heart Walk benefiting the American Heart Association (AHA). The mission of the AHA is “building healthier lives, free of cardiovascular diseases and stroke.” An important part of this mission is spreading awareness of the prevalence of heart disease, promoting familiarity with symptoms and educating health care providers about best practices.
In October 2009, I was misdiagnosed by doctors at an urgent care center and later at the ER, which could have easily led to my death. It’s critical that we know the symptoms of various types of heart disease so we can advocate for our own health. Did you know that heart disease is the #1 killer of Americans (and the #1 killer of women over 25)?
I set a personal goal to raise $500 for heart disease and stroke research and education, which I have already surpassed thanks to your generous contributions! My new goal is to reach $1000 by the end of September. Thank you to those who have already contributed – to the rest of you, please help me reach my new goal and further the fight against heart disease! Also, if you are interested in walking with me (in Bridgewater, NJ), please let me know – the more the merrier!
You can help by making a donation online or by sending a check to me. A donation of any size is greatly appreciated and will help me achieve my goal. Click HERE to visit my personal donation page where you can make a secure online credit card donation. The American Heart Association's online fundraising website has a minimum donation amount of $25, but please feel free to make a smaller donation by sending a check directly to me. Your donation will make a difference in the fight against our nation's #1 and #3 killers - heart disease and stroke. Thank you for your support.
It’s been a while since I’ve shared a status update. Things are good here. Besides the occasional bad day and some lingering side effects like insomnia and a sore chest, I am trending toward normal. Apparently, six months is the magic timeframe after which I will consistently feel normal, so I’m looking forward to that. Today marks my six-week anniversary, and I celebrated with an excitement-free biopsy experience this morning, which is just how we like them. This was my last weekly biopsy, which is a huge relief for my poor neck! I will now have them every other week for six weeks, then they will spread out even more. Wahoo. I’ll find out my rejection score tomorrow or Friday – I have fortunately had no rejection the last two weeks.
About the American Heart Association:“The American Heart Association is the largest voluntary health organization working to prevent, treat and defeat heart disease, stroke and other cardiovascular diseases. These diseases, the Nation's No.1 and No.3 killers, claim more than 865,000 American lives a year. Thanks to all our walkers, donors and volunteers who have accepted the challenge to help fight heart disease and stroke. We cannot achieve our mission without each one of you!”
Labels:
5k,
american heart association,
CHF,
heart disease,
heart failure,
heart transplant,
mile,
stroke,
walk
Subscribe to:
Posts (Atom)






























